BLOGS	BOOKS	FACEBOOK	GENERAL	MEDICAL EQUIPMENT
PREEMIES	PREGNANCY	REMEMBRANCE	SUPPORT	TWITTER

BLOGS:
Adventures in Preemie-sitting

Prematurity is a tragedy. Preemies face many more issues than full term babies, and extremely premature babies like Noah rarely escape without some sort of long term consequences. Life will always be more of a challenge for Noah, and more of a challenge for me because he came into my life. That just means that we'll develop strong characters along the way - something that's sorely lacking in our society today. Raising an extremely premature son isn't easy. I wouldn't have picked it for myself if given a choice. No one would. But Noah has given me the ability to be thankful for every little thing in my life and for that I am eternally grateful.

All About the Benjamin Baby

Benjamin, an amazing micro-preemie, was born at 23 weeks and 3 days gestation on February 7th, 2011 – weighing in at 1 lbs, 12 oz. He is a real fighter and has beaten so many odds already, including PPROM at 19 weeks gestation.

Amelia's Progress

Amelia Elizabeth was born on April 2, 2009 at 12:08 am. She finally made it home after a NICU stay of 335 days. We are so happy to finally be together as a family. Amelia has grown to be a very happy, joyful and social baby. We are thankful for all the people that worked together with Amelia to bring her home safely. Now the fun begins!

Anastasia Elise Miracle Baby, 25 week preemie

Anastasia was born at 25 weeks gestation (15 weeks early) after I experienced PROM (Premature Rupture of the Membranes) at 20 weeks into the pregnancy. Anastasia weighed a mere 1 lb. 13 oz. That made her an extreme (or micro) preemie.

Baby Pierce

Pierce Nikolas Franks was born on April 12, 2011 at 23 weeks 5 days gestation.

Bad Mommy, No Biscuit

Blog of a Vent Mom

I'm the mom of 26 weeks twins born under 2 pounds on 9/17/09. Alex is healthy and age appropriate. Lauren is vent dependent and blooming.

Blogging Hallie and Lea's Life

Hallie Rose was born on June 11, 2006 after her mommy went into pre-term labor at 23 weeks with Hallie and her twin sister, Olivia Skye. She spent 121 days at the Intensive Care Nursery at Pennsylvania Hospital in Philadelphia (one of the only places that will even dream of taking 23 weekers) where she got expert care from a team of Neonatologists, nurses, Physicians' Assistants, and Nurse Practitioners.

Cerebral Palsy Baby

I live near Seattle, Washington with my husband and two daughters. I stay at home with my girls and spend my time doing freelance graphic design, sewing, and cooking. I often kid that I'm a modern day Laura Ingalls Wilder.

Chasing Babies

Originally we created our website to post some pictures of us (who wouldn’t want to look at us on the web?). Then we found out we were having triplets.  About 20 weeks into the pregnancy we were put on bedrest. So about a week later we were hospitalized. Well after living in the hospital for 3 weeks, the babies decided it was time to see the world. That’s right we had 24 weekers!

Checking On Nina

Triplet girls born March 11, 2007 at 24 weeks. Georgia Mary 1lb 2oz,Nina Rose 1lb 3oz, Livia May 1lb 1oz... Georgia and Livia both died of NEC. Nina came home after 14 weeks (102 days) Wanted to give Nina a sibling...May 2009 delivered our full term son sleeping....

Confessions Of A CF Husband

My name is Nathan. My wife, Tricia has Cystic Fibrosis (CF) and had been preparing for a double lung transplant until we discovered we were pregnant. Surviving a premature birth, double lung transplant and lymphoma is just the beginning of our story.

Day by Day

The story of a 26 week preemie named Kellar...

Delaney Rae Bartling

Born at 27 weeks on January 29th, 2009 at 3:11pm, weighing 2lbs 7oz. and 14.5" long.

DorrieDorrie

Elizabeth Ann

Born on December 17, 2004 at 05:38. She weighed 1 pound and 10 ounces and had a pretty good cry on the way out.

Flotsam

My daughter was born less than a month later after a stint of hospital bedrest, during which they never gave me enough sausage for breakfast, and after which I will never again take for granted the luxury of wearing clothes that do not tie in the back. Simone spent 96 days in the NICU and almost died, but in the end, she didn’t.

Heaven and Earth

I am mom. I am a taxi driver. I am a teacher of children. I am a truck driver. I think I am funnier than I am, smarter than I am, and stronger than I am. Thank God I have my beautiful kids here on Earth, and my Angel in Heaven to keep me grounded! Pull up a chair and follow along!

His Middle Name

After my son was born 14 weeks premature, my husband and I were desperately searching for any information or resources out there for parents of preemies. His Middle Name has been started with the hopes of creating a sense of community among parents of premature children while providing advocacy, education and awareness and most importantly, a source of inspiration and hope.

Impressions

I began this blog as a way to tell the story of the preemie journey of our son, born at 28 weeks gestation. It has become a chronicle of sorts, a way to process my impressions of everyday life, of being a wife and mother, of working and playing, loving and believing.

J-ust m-e

I'm a Mom to 4 children here and 2 in Heaven! Liam is a surviving twin micro-preemie born at 24 weeks/0 days weighing 1 lb 5 oz at birth. My blog was started as a way to highlight the ups and downs of homeschooling but turned into a lifesaving journal of our prayer requests for Liam during his hospital journey.

Kieliszeks

In 2007 we were shocked to learn we were having twin girls and if that wasn't crazy enough we only had 6 weeks to prepare (if that's even possible). Yes, you heard me right they decided to make their grand entrance at 26 weeks. Then in 2009 we decided to make life a little more exciting and we welcomed Emmitt Vaughan to join us. Though life has been a roller coaster we wouldn't have it any other way!

Kiera Rose: Micropreemie at Large

I was born August 12, 2006, about 12 weeks early, weighing 1 lb 8 oz. I was hospitalized for 514 days, 6 months in NICU and 11 months in PICU, and I finally got to go home for the first time on January 7th, 2008. I've been working really hard to grow my lungs bigger and stronger so I can eventually get off my ventilator and do all the things other kids do. I'm pretty tough but my smile will charm you. 

Kilo Kai

Kai was born at 26 weeks gestation at 9:10am Sunday morning May 8th--it was also Mother’s Day. He weighed 2 pounds 4 ounces was 12 inches long.

Kinnick Kay and Carver Lee

This blog is intended to share updates and information about Kinnick and Carver's Journey as 23 weekers. Kinnick and Carver were born 3/29/07. Carver is Blind/Deaf and has Spastic Quadriparesis CP. He has Bilateral Cochlear Implants and is learning to hear with them. Kinnick is Blind and has Hypotonic CP. We do not allow their disabilites to get in the way. They work hard daily to beat the odds.

Life is a Journey. Enjoy the Ride!

Random thoughts of life, liberty and the pursuit of happiness from an infertile, late-in-life Mom of identical twins born 16 weeks premature.

Life With Eliza Grace

Eliza Grace was born on March 15, 2006, at 26 weeks, 4 days, weighing 1 pound 4 ounces and measuring just 11.5 inches long. She is the light of my soul and this is the story of our life in the big city.

Littlemanbig: A Micropreemie Adventure

Micro Mom Blog

After years of infertility issues an amnio caused my water to break at 17 weeks on my twin pregnancy, I spent 10 weeks on bedrest. Corinne Margaret and Kaitlyn Elizabeth were born on 10/4/05 13 weeks early (26 weeks), each weighing 1.5 pounds. Our precious Angel Corinne only lived for 3 hours. Kaitlyn spent 127 days in the NICU. I chronicle the life of my miracle Micro Preemie daughter.

Micro Preemie Twins: The Story of Holland & Eden

Twin girls Holland Mirabell & Eden Deanna were born prematurely at 24 weeks 3 days gestation on July 31st, 2004, 3:02 am. At birth Holland was 1 lb 3.5 oz, 11.5", Eden 1 lb 5.5 oz, 12". This is their story...

Olivia and Logan

I unexpectedly gave birth at 23 weeks to micro-preemie twins on August 27, 2007. Olivia Paige weighed just 1 lb 1.5 oz and was 11.5 inches long. Logan William weighed just 1 lb 1.75 oz and was 11.5 inches long. Our sweet Logan passed away after 1 month and 1 day. After 105 days, we were able to bring Olivia home. She is our miracle, our survivor, our joy...

Our Little Acorn

Acorn, our former 27 weeker, who spent most of his first year and a half on a ventilator. He's got a tracheostomy, a g-tube, and a wicked sense of humor.

Our Miracle Boy

This is the amazing story of our micro preemie, John Craig. He was born on November 30, 2005 at 24 weeks and 5 days gestation. He weighed 1 pound 8 ounces and was 12 inches long. John is a true miracle and an inspiration to all that meet him!

Preemie Beth

Beth was born 14 weeks too early on January 31, 2006 and weighed 1 lb and 15 oz. Now a healthy little girl, this blog discusses her journey through the NICU and now as a "graduate" navigating the world with her family at her side and her twin sister, Julianne, watching over her from Heaven.

Quilao Triplets

I try to find the humor in life as I juggle work and raising triplets. It's not always easy, but you can find the laughter if you look for it!

Robin Elizabeth

I am a single mother by choice of a 23 weeker little girl and this is our story. Elizabeth spent 143 days in the NICU and suffered the ususal complications including a grade three brain bleed. Elizabeth is on the ASD with a mild case of PDD NOS and I pray that she will grow out of it. Elizabeth also has stage 4 ROP and is legally blind but does amazinlgy well with her poor vision.

ThadenPierce

We began our blog in the spring of 2005 to provide updates from the NICU when Ben arrived at 23 weeks gestation. Over the years our blog evolved from primarily medical updates for family & close friends to a general family site through which we met so many incredible online friends.

the babies who couldn't wait

I'm a South African now living in Germany with my german husband. In August 2007 we welcomed our beautiful twin daughters three and a half months early to the world.

The Buckley Family

This is the story of our triplets who were born at 26 weeks on 7/17/07 and were finally reunited after 4 1/2 long months in the NICU. They are our little miracles and they continue to amaze us everyday!

The Continuing Adventures of SuperPreemie

This blog chronicles the adventures of our daughter Shoshanna, who was born at 25 weeks, 3 days gestation, weighing 1 pound, 13 oz. She spent 89 days in the neonatal intensive care unit and continuing care nursery, and came home two weeks before her due date.

The Emma Report

The epic journey of a 24-week micro-preemie.

The Hanna Family

On October 7th, 2008 Noah Mark and Jonah Coy joined our family. They were born prematurely at 24 weeks. After six months in the hospital we finally took them home. Jonah is in daily therapy to give him every chance at rising above the high risk for disability that he faces due to his Grade 4 bilateral bleed he suffered as a result of his prematurity.

The Harris Family Blog

On Jan. 10, 2008 our twins were born at just 24 weeks 0 days. Our son Braden is now 3 yrs old and is our little hero. His twin sister Kaleigh passed away on Jan 23, 2008. We miss her and think of her daily. Our 3rd child Grayson was born on May 24, 2010 at 39 wks.

The Preemie Experiment

A blogging community dedicated to the open discussion of the long term effects of prematurity.

Tiny Blessings

Caitlin Gean was born at 24 Weeks Gestation, 4 months early she is a surviving twin of Sister Madilyn Angelia. She is our little miracle and such a blessing too.

Thumba_Lea

Lea was born at 29 weeks, weighing 1 lb., 14 oz. Lea's early birth taught me so much about faith, and has made me passionate about supporting other preemie parents. Please visit our blog, and E-mail us with any questions, concerns or for any advice!

Veronica's Journey

Veronica Katherine entered this world unexpectedly on April 18, 2011.  Being born at only 24 weeks gestation, Veronica was designated as a "micro preemie", and weighed only 1 lb, 4 oz.  This blog was created to keep family and friends updated on Veronica's progress.  Hopefully, this will also be a place where Veronica can visit when she is older so that she may experience her incredible journey.

BOOKS:
NICU Parent Support Site NICU Parent eBook

Our freely available eBook "For Those Who Hold the Littlest Hands" is a complimentary resource for NICU Parents from the NICU Parent Support Site. In this free eBook NICU parents can find information, support and resources for understanding more about the Neonatal Intensive Care Unit (NICU) or Intensive Care Nursery (ICN). Also included in the NICU eBook are the normal, expected responses to a sudden challenge or life changing event as well as suggestions for getting through this challenging time to be available and support your newborn.

Preemie Primer

Website featuring the book The Preemie Primer: A Complete Guide for Parents of Premature Babies by Jennifer Gunter, MD – a guidebook for parents with premature babies – as well as a blog, preemie products, and information about preventing prematurity.

Preemies: The Essential Guide for Parents of Premature Babies

By Dana Wechsler Linden, Emma Trenti Paroli and Mia Wechsler Doron M.D.

Pocket, August 2000

FACEBOOK:
Hand to Hold

Hand to Hold, a nonprofit organization, carefully matches seasoned parents of preemies (Helping Hands) with new parents in need of support. These one-on-one relationships inspire hope and offer the chance to ask personal questions and receive support from someone who is uniquely familiar with the experience of preterm birth, life in the NICU, a child born with a special health care need, loss of pregnancy, and/or infant loss.

Jlyasdi's Journey- Christian Based Preemie Service

Jlyasdi's Journey is a non-profit organization that is a Christian based preemie service. Our mission is to provide encouragement and support such as lodging, food, travel expenses, and prayer pagers to Neo-Natal Intensive Care Unit (NICU) families.

Linky Dink, Micro-Preemie Miracle

Lincoln was born at 25 weeks, 1lb 8.5oz... he has extreme short gut syndrome and a few other preemie complications but is a happy, beautiful, and amazing little boy!

Little Tait Foundation for Preemie Aid

The LTFPA is a non-profit organization founded to help the families of preemies with the financial burdens accompanying the arrival of their new blessing.

Micro Preemie Moms

A group of Mothers of Micro Preemie children (children born weighing approximately under 2 pounds). Membership to this group is Limited to Micro Preemie Moms/Dads. In your request to join, please indicate some birth details about your  preemie.

Not Even A Bag of Sugar

My blog shares the journey of my son Joseph, born at 27 weeks weighing 1lb 7oz - not even a bag of sugar!

Parents of Micropreemies

Just a place where parents of very early preemies can talk about their kids, ask questions, share pictures, etc.

Praying for Madilynn Rose

On June 14th, 2010 @ 12:50am Miss Madilynn Rose Haefs made her debute completely unexpected at 23weeks 5days gestation.

Preemie Babies 101

A blog for parents and family of preemie babies! I talk about everything from high-risk pregnancies to having preemies, spending time in the NICU, bringing baby home, raising a preemie, and much more. Come read parent stories and share your experiences with us!

Preemie Mama

Preemie Mama is a blog dedicated to life after a premature birth. As parents of preemies, it's hard to find the information we need to handle life in a completely different world. I want To educate people about what it is like and to help those who have been there to heal.

Preemie Parents

This page is set up to connect preemie parents around the world! It is managed by two preemie moms who know the ups and downs of having a preemie in the NICU. Post your story, comments, child's development...for others to learn from and connect to!

Preemie Parents Foundation

The Preemie Parents Foundation is a non-profit (501C3 - pending) organization dedicated to providing the parents and caregivers of premature babies with the tools, resources and support needed to take this unexpected journey from a place of bewilderment to a place of empowerment.

Preemie Power

Preemie Power is a movement. It's all about celebrating the strength of the tiniest heroes, connecting families in a meaningful way, and informing the community about prematurity.

Preemie Prints

Welcome to Preemie Prints, a 501(c)(3) non profit organization, offering information, support, photography, NICU gift bags, and prayer to moms and families with a premature baby.

Project Sweet Pea

Helping families who have a child in the intensive care unit by providing care packages that offer a touch of comfort while building cherished memories.

Sweet Pea Project

The Sweet Pea Project offers comfort, support and gentle guidance to families who have experienced the death of a baby.

The Alyboo and Izybee Foundation

We are a non~profit which makes handmade items for babies in the NICU and we also provide support to their families during their stay. For information or to volunteer visit our website: www.abibf.org

The Preemie Palace

From small beginnings come great things. To provide support for any parent of an infant born before 37 weeks gestation or survivor of a long NICU stay.

GENERAL:

Growingyourbaby.com

Our site is dedicated to parents who want to stay current on the ever-changing world of parenthood. We research and post information about important issues, interesting products, helpful tips, inspirational stories and celebrity parents. I am the stay at home mom of two boys, 3 and newborn. Before my first son was born at 24 weeks I did extensive research on anything baby. That is when I created Growing Your Baby so that all parents could benefit from the research I do. With that being said, I have a special place in my heart for babies who were born early and my readers will find many articles on this site about premature infant health and amazing survival stories.

HealthyChildren.org

The only Web site backed by 60,000 pediatricians,  HealthyChildren.org offers trustworthy, up-to-the-minute health advice and guidance for parents and caregivers, along with interactive tools and personalized content.

Innovative Mommas Inc.

The Original Baby Ankees have been created as a soft seamless band that easily slides on the foot, over top of your babies sleeper, covering their ankles. This will help keep your babies feet inside their sleeper. Most sleepers are either too big or too wide in the feet, this makes it difficult for a baby to move naturally.

Snoedel

Snoedel is the original sleeping and bonding aid for babies completely handcrafted in the United States by moms, grandmothers, and female college students under "newborn-safe" conditions (environments free of tobacco and perfumes.)

MEDICAL EQUIPMENT:
Neotech Products

Neotech is a leader in the development of innovative neonatal, pediatric and respiratory products that can help patients globally. They specialize in creating skin friendly products that are ideal for neonates.

Philips Children’s Medical Ventures

Philips Children’s Medical Ventures is a leading provider of education services and developmentally supportive products for premature babies, healthy newborns and hospitalized infants.

PREEMIES:

BabyandBump

A site with a number of forums including loss support, support for parents of preemies, parenting support for families with a child with special needs, and trying to conceive after a loss.

Baby First

Provides clinical knowledge and educational resources to support medical professionals and parents of premature infants.

Early Buds

Early Buds provides current and useful information, personal stories and product samples specifically for premature babies and their parents in our "prem packs".

Inspire

Inspire connects patients, families, friends, caregivers and health professionals for health and wellness support. Inspire works with trusted health partners to build safe and secure health and wellness groups.

KidsHealth

Common diagnosis in the NICU.

MicroPreemies.com

A place of support for parents of very early preemies.

NICUniversity

NICUniversity provides neonatologists and other members of the professional neonatology community with continuing education credits, as well as cutting edge neonatology research and information.

Parents of Premature Babies Inc. (Preemie-L)

A non-profit foundation supporting families with children born six weeks or more before due date.

Preemie Help

Preemiehelp is a community hub and expert resource, a place where families and friends come together to find easy to understand information, support, and solutions for anyone requiring anything related to preterm birth.

Preemie Parenting

A place created for parents and loved ones of premature infants, and women experiencing a high risk or complicated pregnancy. The site is devoted to supplying information, support (chat and email discussion list), mall, bookstore and a variety of resources.

PreemieBlogMoms

A place for fellow Preemie Mom's who blog to share about our children. The membership of this group is limited to Parents of  (children who were under 2 pounds at birth).

preemieschat

PreemiesChat is a gathering place to meet other preemie parents and friends of our precious preemies.

PreemieVoices

Sponsored by MedImmune, Preemievoices.com is a web site housing information on activities, news, current affairs, legislative issues, links and resources within the prematurity community.

PreemieWorld

PreemieWorld was created to help bridge the gap between parent and professional in the NICU, at home and beyond.  With books, videos, and other products and tools, the hope is to make everyone’s life just a little bit easier as the “new normal” is created in the life of the preemie and his/her family.

Premature Baby Journal

Having a child that is born premature can be a very traumatic rollercoaster ride and this app created by the Australian charity the Life’s Little Treasures Foundation provides a place to store all your baby’s medical progress as well as a journal section for you to record your feelings. 

Premature-Infant

Neonatal nurse, mother of a preemie and author Dianne Maroney offers information and resources about prematurity and infant care for parents and medical professionals.

Prematurity

This parent-run website features many articles on prematurity and preemie care, book reviews, directory of stores selling preemie items, a section for celebrations and milestones and more. They also have a listserv for parenting young preemies and another for parents with older preemies available.

Preterm Labor and Birth

Information from the National Institute of Child Health & Human Development.

Share Your Story

An online community developed by the March of Dimes for NICU families. The site includes online discussions, places to start blogs, and a way to make friends.

PREGNANCY:
Baby Center

An interactive parenting network site that provides support for parents at every stage of their child’s development – from pregnancy to “big kid” and beyond.

I-am-pregnant.com

I-am-pregnant.com is an info community where parents and parents-to-be can read, learn and talk about anything related to young babies. You can read and talk about babies, pregnancy and birth in over 500 forum topics, ranging from bathing your baby to pregnancy tests.

The Bump

A website giving you the inside scoop on pregnancy.

REMEMBRANCE:
Calvin’s Hats

Calvin’s Hats are hand knit for babies who are born too early to survive. When we lost our son, Calvin, we discovered there is little clothing tiny enough for babies that are born too early. Although the hospital offered us preemie-sized hats for our son's small head, they were still too big.

Center for Loss in Multiple Birth

Our mission is to provide parent-to-parent support for all of us who have experienced the death of one or more of our twins or higher multiple birth children at any time from conception through birth, infancy and early childhood. It is also to assist extended families, caregivers, twins and multiples organizations and others who are seeking to understand and support the needs of parents with a multiple birth loss.

Infants Remembered In Silence , Inc.

IRIS is a 501(c) 3 non-profit organization that is dedicated to offering support, education and resources to parents, families, friends and professionals on the death of a child in early pregnancy (miscarriage, ectopic pregnancy, molar pregnancy, etc) or from stillbirth, premature birth, neo-natal death, birth defects, sudden infant death syndrome (SIDS), illness, accidents, and all other types of infant & early childhood death.

Lynda P Haddon Prenatal Education and Bereavement Support

Although a joyous time, there are sometimes risks in multiple births. Hence this Web Site also offers bereavement support for parents who have lost one, more or all of their multiple birth children during pregnancy or in infancy.

MISS Foundation

The MISS Foundation is a 501 (c) 3, volunteer based organization committed to providing crisis support and long term aid to families after the death of a child from any cause. MISS also participates in legislative and advocacy issues, community engagement and volunteerism, and culturally competent, multidisciplinary, education opportunities.

Mommies Enduring Neonatal Death

M.E.N.D. is a Christian, non-profit organization that reaches out to families who have suffered the loss of a baby through miscarriage, stillbirth, or early infant death.

Newborns in Need

Headquartered in North Carolina, Newborns in Need offers a variety of programs including Bereavement Support which consists of a complete layette for child who has passed away and memorial items in remembrance.

Now I Lay Me Down to Sleep

To introduce remembrance photography to parents suffering the loss of a baby with the free gift of professional portraiture. We believe these images serve as in important step in the families healing process by honoring their child’s legacy.

Share Pregnancy and Infant Loss Support, Inc.

The mission of Share Pregnancy and Infant Loss Support, Inc. is to serve those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth, or in the first few months of life.

The Compassionate Friends

The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive.

To Write Their Names in the Sand

A beach memorial for young lives lost.

SUPPORT:

CaringBridge

CaringBridge websites offer a personal and private space to communicate and show support, saving time and emotional energy when health matters most. Learn more about creating your own website that gives recognition to Graham’s Foundation.

Isabella's Giraffe Club

Isabella's Giraffe Club is a non-profit 501 (c) (3) organization committed to providing emotional and edcational support for parents with infants in a Neonatal Intensive Care Unit.  We sponsor events and projects to maintain and improve the quality of care and caring provided to parents and families.  We strive to facilitate and enhance communication and mutual understanding of roles and relationships between families and healthcare workers. We offer bereavement programs and support groups for anyone who has suffered the loss of a loved one.

March of Dimes

Our mission is to improve the health of babies by preventing birth defects, premature birth, and infant mortality. They carry out this mission through research, community services, education and advocacy to save babies' lives. March of Dimes researchers, volunteers, educators, outreach workers and advocates work together to give all babies a fighting chance against the threats to their health: prematurity, birth defects and low birthweight.

Miracle Babies

A volunteer driven nonprofit based in San Diego begun by a doctor and father of a preemie that provides support for preemies in the NICU/Neonatal Intensive Care Unit and their families. They primarily provide financial assistance to families in need with newborns in the NICU to pay for items such as copays for durable medical equipment, cribs, medicine, rent, funeral assistance, bus passes, and much more.

NoTube.at

NoTube.at is the first website offering an effective online medical coaching service for children with early eating behaviour disorders, particularly tube dependency. This condition leaves a child relying on a temporary feeding tube without any medical intention or cause. The effects can be devastating. Typical symptoms of tube dependency are oral and tactile avoidance, food refusal, often accompanied by recurrent vomiting, nausea, gagging and wretching.

Parent Resource Network

Since 2008, PRN has been providing services to families in the Pittsburgh-area and out of state (TX, MN,CO, CA, AZ, and Canada).  Our services include:  Bereavement Program, Hospital Outreach, Helping Hands, and Toll Free Line.

Pictures of Hope Foundation

Pictures of Hope is a charitable organization of professional photographers who provide complimentary, documentary-style, photography sessions to babies in the Neonatal Intensive Care Unit (NICU) and their families.  The Pictures of Hope Foundation is comprised of photographers (many of whom are “NICU mothers” themselves) from across the United States and Canada who are dedicated to donating their time to a cause they believe in, and sharing the gift of photography with families in need.

PreemieCare

PreemieCare is a non-profit organization dedicated to supporting families of infants born preterm through education, support, and resources. PreemieCare is a relatively new division of MOST (Mothers of Supertwins), Inc. a non-profit parenting organization that provides information, education, support and additional resources for families of multiples.

Preemies Today

Our mission is to provide outreach and support programs to families of infants born prematurely beginning at birth and throughout childhood. They are located in the Washington DC metropolitan area and have local events in Northern Virginia, Maryland, and DC.

Quint Boenker Foundation

Located in Fort Worth, Texas, The Qunit Boenker Foundation funds research to improve the survival rates of premature babies. Donations also go toward bereavement support to cover counseling costs and other needs a family might have who have lost a baby.

Sidelines National Support Network

Sidelines is a 501(c)3 non-profit organization providing international support for women and their families experiencing complicated pregnancies and premature births. Sidelines is committed to providing support, education, and advocacy to women with high-risk pregnancies.

Spenser’s Hope

Headquartered in Monrovia, Maryland, Spenser’s Hope provides information on premature birth and a variety of related topics. They also provides preemie quilts for babies in the hospital and Affirmation of Life plaques if a child is lost.

The Christopher Joseph Concha Foundation

Waterbury, CT-based nonprofit organization that provides education to parents with premature children, to raise awareness about premature births, and to support research into premature illnesses.

The Tiny Miracles Foundation

A not-for-profit organization (made up of parents of preemies with firsthand experience in the NICU) that is dedicated to helping families of infants born prematurely in Fairfield County, Connecticut.

TWITTER:
apreemiething

Preemie Mom who decided to look at the humorous side and create funny onesies for our little miracles.

katfulton

I'm a NICU music therapist. I drum and make music with corporations, older adults, and kids.

LahavLab

Dedicated to improving the quality of life for critically ill and extremely premature infants.

MikeOllie2

The story of premature twins, Isaac & Molly, born at 24 weeks and how their survival changed a family.

mom2apreemie

Mom 2 an amazing 27weeker.

nicuparent

After 2 early birds (one 500g 25-weeker and one robust 33 weeker) I've decided to spend more time thinking about NICUs, not living in them.

NICUnetwork

Nonprofit Org. Supporting Families of Those Born Premature or Ill. NICU family support, preemie playgroups, organize donations for KC NICUs www.NICUnet.org

PeekabooicuRN

Neonatal Intensive Care R.N. launching brand new preemie website to provide information and support to parents of a preemie or baby in the NICU.

PreemieHUG

Diplomat College of Physicians(AAIM), Listed Provider on MedEdppd.org, Cert.Breastfeeding Ed., Mind/Body Med.for prevention of pre-term birth, Neonatal Dev. Sp.

prematurity

OB/GYN and mom of two 26 week boys. Author of The Preemie Primer. My tweets are not medical advice.

tinysurvivor

wife to my best friend and mom to a micropreemie miracle (1 lb., 8 oz. at 26 weeks), contributor at Preemie Babies 101, teacher (on hiatus), photographer

TodaysPreemie

I have been through the NICU twice & want to give something back by raising awareness of prematurity.