Graham's Research Corner
We pride ourselves on representing the priorities and needs of preemies and their families. Our aim is to help shape and support breakthroughs through strategic partnerships focused not only on preemie outcomes, but also family-centered care in the NICU and beyond.
Our focus on research is providing us with a unique opportunity to transform the journey of prematurity for not only the parents who reach out to us, but for all preemie parents as well as babies, children, and all others whose lives are touched by premature birth.
Below you will find studies that our Research Committee has reviewed and we encourage your participation.
The Fab Study
Researcher: Olivia Yaksich, Project Coordinator for The FAB Study
Institution: Mater Research Institute, School of Psychology, The University of Queensland, Australia
Researchers from The FAB Study at The University of Queensland (Australia) are taking a much-needed positive approach to understanding the family unit by exploring factors that promote resilience to stress following the birth of a preemie miracle. If you are a parent of a preemie child between the ages of 0 – 18 years, please […]
NICU Family Social Media/Online Health Community Use
Researcher: Shannon Adams, 4th year medical student Brown University
Institution: Warren Alpert Medical School of Brown University
The purpose of this survey is to gain insight into how families who have experienced the NICU with their child use social media and/or online health communities, and how that usage impacts relationships with their baby’s medical care team. This survey is both voluntary and anonymous. Completion of the survey indicates your willingness to participate […]
Parent to Parent Support in Early Intervention
Researcher: Robin Dodds, Ph.D
Institution: Charter College of Education
In this study we hope to learn about the impacts of Parent to Parent support in Early Intervention on families and children.
Mothers’ Decision-making for Preterm Infant Sleep: What are the Influencing Factors?
Researcher: Beverly Capper
Institution: Case Western Reserve University
Caring for a preterm baby can be challenging. We are seeking ways to better understand decisions regarding sleep arrangements for preterm infants.
This is a one-time survey that should take approximately 15-20 minutes.